2018 Cure the Cycle Challenge
Donate Now
27%
 

Goal $1,500.00

$400.00Raised

Why I Ride:   I'm passionate about supporting the National Urea Cycle Disorders Foundation and the fight to conquer urea cycle disorders and to protect affected children and adults from suffering neurological and developmental disabilities. I'm investing in the vision of a world where no child or adult suffers or dies from this disorder and they can live long and productive lives.

As most of you know, our son Anthony was diagnosed at 22 months old with Urea Cycle Disorder(OTC). We are forever grateful to the National Urea Cycle Disorder  Foundation for their support from the time he was diagnosed.  They have supported and guided our family through numerous hospitalizations over the years. Like all families affected by Urea Cycle Disorder, our hope is for a CURE!  NUCDF is the driving force to achieve that goal.  NUCDF is responsible for funding clinical research, education,support ,  and networking families together. 

Today, Anthony is a 20 years old college student , who recently made the Dean's List  and is thinking about choosing Computer Programming as his major. We are so fortunate that Anthony has so many opportunities and possibilities ahead for his future.  THANKS to NUCDF , he has made it this far. 

This year will be my 7th year in a row, with my dear friend Sharon ( who has completed all previous 6 years with me as well). We will be attempting to complete 65 miles! As I am pedaling up and down the Napa roads I will be thinking about how grateful I am for the wonderful supportive friends and family  Steve and I have.  We have come a long way in research and treatment since Anthony was diagnosed. He is doing fantastic on a drug , which he participated in the Phase 1drug trial and was FDA approved 5 years ago.

The future looks bright, but our work is not done. Everyday , NUCDF is striving for improved  research for better medical formulas to improve quality of life for people with Urea Cycle Disorders and most importantly an eventual CURE!

Thank you in advance for your support and donations, no amount is too small. 

Love and Gratitude, 

Amanda Sonntag

 

 

 

 

 

 

Thank you for your support! Your donation is tax-deductible and 100% of your pledge goes to support the mission of the National Urea Cycle Disorders Foundation. For more information on UCDs, please visit the Foundation website at CureUCD.org.

Comments

  • Barbara (about 3 days ago)

    Keep pumping! You can do the 65 miles! So proud of you!

  • Bernie (about 2 weeks ago)

    Have a fun ride with Sharon. Hope for cool weather and no fires.

My Status
Number of pledges received: 3
Goal achievement: 27%
Number of page visits: 78
Days left before event: 28

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