Join us for the 2014 Cure the Cycle Challenge!
Let's Ride to raise $100,000
to benefit National Urea Cycle Disorders Foundation
Make a Pledge to Save Lives
Support the Fight to Conquer Urea Cycle Disorders
We'll be biking 35, 40, 65 or 100 mile routes in Napa Valley, California as part of the famous Tour of Napa Ride from Yountville through the vineyards and mountains of Napa wine country to raise awareness and funds to benefit the National Urea Cycle Disorders "Brain Project." Our goal is to raise $100,000 to support pioneering research to prevent brain damage and death caused by a genetic disorder called urea cycle enzyme deficiency, or urea cycle disorder.
If you think that sounds like a challenge, consider what it is like to battle a urea cycle disorder.
Jim Stavas was a strapping, healthy fire captain for 30 years in Napa Valley when he fell into coma after a simple sinus surgery. Doctors thought Jim had a stroke, but he was not responding to treatment and near death. Jim had been misdiagnosed. He was actually in coma from high ammonia levels due to a rare metabolic disorder -- a urea cycle disorder -- triggered by the sinus surgery. Friends searched the Internet for a clue to his symptoms and contacted the National Urea Cycle Disorders Foundation. NUCDF put Jim's wife, Carol, in touch with urea cycle expert Dr. Gregory Enns at Stanford. Jim started responding to treatment, and began a long struggle to recover from devastating brain injury.
Jim fought valiantly through 18 months of rehabilitation for stroke-like symptoms and a series of hospital-borne infections. He never recovered functional speech or mobility. His devoted wife, Carol, was by his side day and night caring for him. On October 1, 2007, Jim Stavas lost his battle with urea cycle disorder.
On Sunday, August 17, 2014 we ride in memory of Jim and in hope that one day no child or adult will suffer or die from urea cycle disorders. Please join us and help conquer this killer.
Did you know that missing one little enzyme in your body could cause brain damage, coma and even death? Most people don't, until their loved one is affected.
Children and adults with urea cycle disorders (UCD) have a deficiency in one of six enzymes in the liver necessary to detoxify ammonia, which is produced by our bodies when we eat protein. The ammonia builds up to toxic levels in their bloodstream, causing catastrophic effects on the brain -- learning and neurological disabilities, developmental delays, brain damage, coma, and if untreated, death. It is often misdiagnosed as autism, ADHD, stroke, behavioral or psychiatric disorders.
Every day more infants, children and adults are diagnosed with this devastating disorder and the fight for their lives begins. The National Urea Cycle Disorders Foundation is their lifeline, and their hope for research that can improve their futures and conquer this disorder forever.
We hope you will pledge your support for the Cure the Cycle Challenge and help make an impact on the future of those affected by urea cycle disorders. Here are three easy ways:
REGISTER EARLY to bike in the Challenge in Napa Valley (Cyclists and Teams register here). Join us for an amazing day of cycling for a great cause. Bike a flat 35, hilly 40, challenging 65 or 100 mile route (maps) as part of the 38th Annual Tour of Napa Ride. Relax at the post-ride BBQ picnic with live music and maybe a little wine tasting thrown in! Hurry to secure your spot - Challenge Rider spots are limited to 80 cyclists!
No bike, no stamina, but great intentions? No problem! Be a Virtual Rider! Start your own fundraising page, set your goal, and ask your friends and family to donate in support of your goal. It's easy! We've provided all the tools you need right here. Join us in spirit and inspire others - you can even ride, walk, or run in your own neighborhood!
Pledge your support for your favorite Cyclist:
Pledge your support for your favorite Virtual Rider: Families affected by urea cycle disorders, many medical professionals who care for them, and friends of our cause are participating "virtually" in their own communities around the country. Visit your favorite Rider's personal fundraising page and pledge your support! Please help us go viral by sharing on Facebook, Twitter, etc.!
Donate in tribute to a friend or loved one: Your gift is priceless when it makes a difference in the life of a child.
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"At the end of our life our questions are simple: Did I live fully? Did I love well?"— Jack Kornfield