2017 Cure the Cycle Challenge
Donate Now
101%
 

Goal $1,500.00

$1,520.00Raised

Why I Ride:   I'm passionate about supporting the National Urea Cycle Disorders Foundation and the fight to conquer urea cycle disorders and to protect affected children and adults from suffering neurological and developmental disabilities. I'm investing in the vision of a world where no child or adult suffers or dies from this disorder and they can live long and productive lives.

As most of you know, our son Anthony was diagnosed at 22 months old with Urea Cycle Disorder(OTC). We are forever grateful to the National Urea Cycle Disorder  Foundation for their support from the time he was diagnosed.  They have supported and guided our family through numerous hospitalizations over the years. Like all families affected by Urea Cycle Disorder, our hope is for a CURE!  NUCDF is the driving force to achieve that goal.  The Foundation is responsible for funding clinical research, education,support and networking families together. 

Today, Anthony is 19 years old. He just fininshed his Freshman year at college. He is narrowing down the several fields of interests he has, so he will be able to choose his major.  We are so fortunate that Anthony has so many opportunities and possibilities ahead for his future.  THANKS to NUCDF , he has made it this far. 

As, I am pedaling for my 6th year in a row ( attempting to complete 65 miles), up and down the Napa roads I will be thinking about how grateful I am for the wonderful supportive friends and family  Steve and I have. We have come a long way in research and treatment since Anthony was diagnosed. He is doing fantastic on a drug , which he participated in the Phase 1drug trial and was FDA approved 4 years ago. The future looks bright, but our work is not done.

Thank you in advance for your support and donations, no amount is too small. 

Love and Gratitude, 

Amanda Sonntag

 

 

 

 

 

 

Thank you for your support! Your donation is tax-deductible and 100% of your pledge goes to support the mission of the National Urea Cycle Disorders Foundation. For more information on UCDs, please visit the Foundation website at CureUCD.org.

Comments

  • Lynn (about 19 hours ago)

    Sending our love and support Amanda!!

  • Tanya (about 19 hours ago)

    Good luck on your ride Amanda!

  • Jennifer (about a day ago)

    Have an awesome ride!

  • Roxanne (about 2 days ago)

    California from roxy

  • Jill (about 2 days ago)

    You are awesome, keep riding!

  • Erika (about a week ago)

    Good luck on your ride!

  • Cassandra (about a week ago)

    Ride on Girl!! Love you guys! Cassie :)

  • Jill (about 3 weeks ago)

    You are amazing! Love you and boy!

  • Brenda (about 3 weeks ago)

    Go Mandi! You're an inspirato many ~ so proud of you!

  • Brian (about 3 weeks ago)

    Kick ass Mandy!

  • Audra (about 3 weeks ago)

    Goooo Mandi! You are such an inspiration to all and an amazing person!!

  • Susan (about 3 weeks ago)

    Go Mandi! You rock!!

  • Amanda (about 3 weeks ago)

    Sending our love and support to you, your son, and your entire family! Love, David and Amanda

  • Susan (about 4 weeks ago)

    Proud of you once again riding for such a great cause!

  • Bernie (about a month ago)

    Don't forget the T-Relief for the knees.

My Status
Number of pledges received: 18
Goal achievement: 101%
Number of page visits: 239
Days since event: 1

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— Bible (II Corinthians 9:7)
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